A BRAIN cancer that led to the death of activist Laura Nuttall is ‘neglected’ by the NHS, her mother claims.
Laura, 23, died in May after spending five years raising awareness of glioblastoma multiforme.
Mum Nicola, from Barrowford, Lancashire, would like to see improvements in care, more testing and more information about the disease on the NHS website.
She revealed that other sufferers ask her for advice, saying, “I don’t have medical training, but she does.” [cancer patients] come to me and ask me for advice and support.
“I’m happy to admit it, but it’s really unfortunate that someone who runs an indoor play center is considered an expert on glioblastoma.”
“Every time I get an email that says ‘I’m sorry I contacted you, could you give me some advice,’ my heart sinks because it’s about another family looking for one seeks miracles where in reality there are none.
“It just feels like this one is really neglected.
“I know it’s difficult, I know the prognosis is really bad, but we can change that with some effort.”
“There has been no improvement in this cancer for decades.”
She added: “Laura would expect us to keep the fight going.”
A Department for Health and Social Care spokesman said £40million had been set aside for brain tumor research.